For Ken and Ruth Jenkins, Freedom to Move is more than just an event—it’s a tradition they’ve embraced since 2015, and now they invite you to join a cause that has deeply impacted their lives.

Ken, an outdoor enthusiast from Guelph, Ontario, saw his active lifestyle interrupted by a diagnosis of cervical dystonia. Despite facing challenges—managing symptoms, treatment costs, and access to specialists—Ken remains resilient, advocating for himself and raising awareness for others affected by the condition. Ruth, his devoted wife, has stood by his side through every obstacle. While she doesn't have dystonia herself, she participates in Freedom to Move out of their shared commitment to supporting the community and making a difference for others facing the same struggles.

Ken and Ruth's journey began before Ken’s diagnosis, when Ruth, searching for answers about his symptoms, came across DMRF Canada and reached out. The Foundation provided practical resources, including lists of movement disorder neurologists and strategies for managing symptoms. As Ken’s condition progressed, they attended local information sessions that offered valuable insights into the disorder, treatment options, and how to communicate effectively with family, friends, and coworkers. Over the years, Ken has stayed connected with DMRF Canada through virtual information sessions and updates on the latest research and treatments.

They’ve also been active in raising awareness, distributing materials to local health practitioners and participating in the Freedom to Move event (formerly Chuck’s Run) annually since Ken’s diagnosis. For them, the event is not only a way to raise funds but also an opportunity to connect with others affected by dystonia, share experiences, and support research and advocacy efforts. By registering for Freedom to Move, you’re not just joining a fundraiser—you’re becoming part of a movement that transforms lives. As Ken and Ruth say: "Together, we are stronger, and through community, we can make a difference."